Wednesday, April 29, 2009
Are you kidding me?
There have been many of you who have been praying with us and sending love notes, blog post comments, and emails; thank you and keep them coming. You can pray for my nerves which seem to be kicking in now that I'm doing the "pre-op" work because it's making it all so real now. Also there are some of you who have been asking about visits and meals during recovery. As of now Jay plans to take Monday & Tuesday off work. I'd love some bits of company during the rest of the week and we'd both appreciate meals. Please contact us to coordinate this. There are no words to describe just how grateful we are. We are so blessed to have each of you in our lives.
I've realized that the mailbox can be your friend or your enemy. It was wonderful to receive the letter of authorization approval earlier this week. Yet last night I admit I was fuming and annoyed when I received a Federal court jury summons! Are you kidding me? It's a month from now which means I should be medically cleared. Yet, if I try to postpone it, I'm afraid it will come at the beginning of fall when we have two destination weddings. So at this point I think, I just need to do it. It's funny, but sad at the same time. I mean, what else does God plan to do to keep me from finding a social work job? So far it's been death, declining economy, drop in the job market, taxes, surgery, jury duty, weddings, ...? Maybe I should take a poll of what's next? Then again, maybe I'd rather not hear what wacky ideas you might think of (and no, I'm not kidding about that)!
Monday, April 27, 2009
GO BRUINS!
Then tonight I went to get the mail. There in our mailbox was the authorization approval letter for UCLA! Praise the Lord! I immediately called the UCLA Cardiothoracic Surgery department. Apparently, the team has been waiting for this letter since last week. All the while I thought no one had been contacting insurance or my primary care physician's office yet. This evening I faxed over the letter to the surgery office and have set a TENTATIVE surgery date for Monday May 4th. There are pre-op tests that need to be completed, so hopefully I can get those done and have the results received in time for Monday's tentative surgery. Continue to pray that things coordinate quickly. The worst is to have your mind set on a surgery date, only to have it postponed. I plan to follow up on this tomorrow, so hopefully I'll have more definite news and will share with you then.
Thank you all so much for your prayers. They have given us peace and have encouraged us to continue to trust in God and His timing!
Thursday, April 23, 2009
gaining clarity
I know this might seem like a sport, but my UCLA adult congenital cardiology team took the lead. They have been MOST helpful in initiating authorization, working to schedule the surgery, and have excellent "hand offs." They were willing to answer the 30+ questions that I emailed them and replied back with all 30 questions answered in 15 minutes; now that's what I call service! Because of the complexity of my case it was made clear that I have to have a cardiothoracic surgeon do the replacement surgery and with that said the UCLA team is 99% confident everything will be approved for me to have the surgery up there. If there are any issues that come up, they will be sent to the hospitals' medical director and will make a great case in my favor. So keep praying that everything will be approved. Let me share with you some details as they were many of our questions and perhaps yours too.
SAFE MODE
There is nothing I should or shouldn't be doing while in safe mode except to minimize exercise or activity if I feel poorly. There are no medications that are given to relieve the discomfort. Being in "safe mode" doesn't necessarily damage the heart. Most feel bad when their pacemaker doesn't increase their rate with activity and over the long-term, that would be a bad thing. It was thought strange that I feel worse at night while resting as most feel the opposite, while they do activity.
THE DEVICE
Because the battery is housed within the pacemaker devise, the entire pacemaker generator will be replaced. The wires do stay as long as they don't see any issues when they test them during the surgery and the entire pacemaker will be replaced with the newest version. It will be the same 8-10 year average with the replaced pacemaker. Wires generally are made to last forever and if they don't work properly, it is a bit bigger surgery. If that ever were to happen, the entire pacemaker and it's wires would be replaced. The newer pacemakers shouldn't be vulnerable to technology advancement, but specific questions I plan to address with another physician.
THE SURGERY
The surgery is expedited as STAT. This is because of my 3 month window and not wanting things to linger. It also means that any contact I make or my case coordinator makes has to be answered within 24 hours. It's likely they will be able to go over my previous scar without having to make a new incision. They do expect to run into scar tissue, but usually it's not a problem. I will require no prophylactic medications nor require to discontinue any of my current medications pre or post op. I will be given antibiotic at the time of surgery. I might be required to have a pre op x-ray to verify the location of the pacemaker, but more so to look at my lungs before anesthesia. It's likely I will be on a respirator for the short term anesthesia with ventilator, but I shouldn't wake up to it in. I will not require chest tubes nor will I be considered an ICU patient. It is expected that I will be outpatient, although this could change if there are any complications or just at the surgeons discretion. It is not necessary for me to meet with the surgeon unless I prefer to at the day of admission. If at UCLA, my surgeon will be Dr. Laks who has done my major heart surgeries at UCLA. If the surgery will be at Hoag, the UCLA team will be in contact to be sure that the technical issues are understood.
THE RECOVERY
I should be score for about one week but able to resume normal activities after that. Jay has already notified work and once a surgery date is decided he will take some time off to "nurse" me back to health. There are no restrictions to flying post op; Kauai here I come!
Thank you again for all your support. I hope that by tomorrow I will have more news to share.
Monday, April 20, 2009
the ironic bionic
I contacted Hoag Pacemaker Clinic and we did a quick phone check. The nurse did confirm that YES I have gone into "safe mode". So my 1-7 month window quickly narrowed to 1 DAY! Yep, that's right. She said that a few patients have had that happen quickly after a check up, but that it doesn't happen often (yeah, I'm not the only one, usually I am). She was so cute to apologize, but has been most helpful. A fax has been sent to both the Hoag cardiologist and my UCLA cardiologist. She also contacted Hoag cardiology and spoke with the office staff. I have been in contact with UCLA cardiology and they plan to get in touch with surgery. I'm pleased to say that I have some helpful staff from both hospitals who are working with me to get the ball rolling for authorization, etc., which has been a prayer of mine.
Some of you music lovers out there might recall the lyrics to Alanis Morissette's song "Ironic." I think that some parts of this song best describe things at this point.
"Isn't it ironic...don't you think.
Well isn't this nice...
Who would've thought... it figures
A little too ironic. .. and yeah I really do think."
Thanks to all who have been praying, sending supportive emails and phone calls. We GREATLY appreciate them. I think that I'm anxious because this is uncharted waters (my first pacemaker battery replacement), but once my questions get answered and insurance approval, I'll feel better about the whole thing. In many ways I'm surprised because I though I'd have more time, but at the same time, I'm not surprised about God's timing. I'd prefer surgery, the sooner, the better. It IS uncomfortable, and I can see why most don't want to wait long for surgery. I'm not as tired as I expected from the heart. I'm more tired because the uncomfortable feelings I have are worse at night when I'm resting, which has made it difficult to sleep. It's not as bad during the day I believe, because I"m moving around and staying busy which increases my bp/pulse and distracts me from my heart. I did ask the Hoag nurse if they could prescribe any medication for my heart to get me through up until surgery, but that was a no. I'll be sure to keep everyone posted as things progress and questions are answered.
Thanks again for your love, encouragement, support, & prayers! Keep them coming~
sunshine
Here's us at Kellen's baseball game on Saturday.
Here's me with Nolan enjoying the shade of the umbrella at his brother's game; it was hot!
Here's me holding Richelle's newborn Elizabeth (Elle) today. I finally got to meet her.My only sunshine(s)
You make me happy
When skies are grey
You'll never know dear
How much I love you...
Thank you for bringing me sunshine!
Love you,
Aunt Erica
Friday, April 17, 2009
the bionic woman and her 7 year average
What I can expect when the pacemaker goes into “safe mode” is to feel weird, VERY uncomfortable, and VERY tired. They said I would most likely notice when climbing stairs or exercising. Basically, my heart will want to go faster because of exertion, but the pacemaker won’t allow it to go full speed to save battery. When in “safe mode” the pacemaker will do a “half ass” job so to speak. It will only pace in one part of the heart, rather then both, and things like that. Most who go into “safe mode” don’t wait too long to have surgery, because they are so uncomfortable. I have 3 months from the time it goes into “safe mode” to have the battery replacement surgery. All the information of what to expect was exactly what my cardiologist up at UCLA said a year ago.
After talking with the two pacemaker technicians/nurses who feel I have a good enough case and my family and because we have two important weddings scheduled in Sept & Oct (and now maybe three) we've decided to get the ball rolling to schedule the surgery. Perhaps by the time authorization and plans for surgery are made, my battery will go into "safe mode" and that it will all be in perfect orchestration. Due to some changes in insurance, I will be having phone checks every 6 weeks rather then every month. If I begin to feel strange and very tired I can call them and they can do a phone check to see if perhaps I have gone into "safe mode" within the 6 week period. So for now the plan is for Hoag pacemaker clinic to notify my Hoag cardiologist to begin authorization and approval for scheduling the surgery at UCLA. My job, is to contact my cardiologist at UCLA and follow up with the cardiologist at Hoag in a week.
Things are sort of making sense with why I haven’t found a social work job. God’s got impeccable timing I suppose, since the day after tax season ends, I find out surgery is just around the corner. Now that the shock is wearing off, I’m beginning to focus my energies on contacting UCLA, and making a list of questions and things to do before surgery. Jay reminds me that this might be the easiest surgery I’ve had. Although I'm quite “experienced” with surgeries, any surgery, no matter how big or small is still SCARY. Thank you to those who have already begun praying. I'll be sure to keep you informed as things begin to unfold. Jay showed me this verse last year and well it came to my mind as I began processing the news.
“Who of you by worrying can add a single hour to his life?” Matthew 6:27 .
after taxing
the boss man handing over our mail "bye-o"
It's unfortunate this ocean view didn't turn out very well because it really was spectacular
Friday, April 10, 2009
PEEPS
As you can imagine I have been working more as tax season has come full swing with loads of activity before the dreaded 4/15 deadline. Last weekend I enjoyed a break at Calvary Chapel Conference Center/Bible College in Murietta Hot Springs a beautiful sanctuary where I got refreshed and refueled. This year, our annual women's retreat theme was based off of Galatians 5:22-23 "But the fruit of the Spirit is love, joy, peace, patience, kindness, goodness, faithfulness, gentleness, and self control. Against such things there is no law." I remember memorizing this verse at family camp one year and have since read it several times. Although this passage is familiar, it's always so amazing how God teaches you new things. Through our speaker CJ Rapp , He deepened my understanding and knowledge of these "graces." We found CJ to be down to earth and a genuine women of God who showed our women the fruits of Christ and how personable He is. I cherished the time of fellowship with the women and the time I spent in His word. I adored the time with my roommates: one who I attend bible study with , and the other the wife of the couple Jay & I did our pre-marital counseling with. I'm thankful that we had our retreat at the same beautiful location. It was a bit chilly, but many of us enjoyed the bits of sun and even got a start on our summer tan. Those of us on the retreat committee were most appreciative of the follow up Mexican dinner the other night paid for by our pastors; thanks guys!
With the state IOU's, the stimulus tax credits, declining job market, and economy, this tax season has been quite interesting. We've been hearing stories of layoffs, people returning to their home countries, real estate scams. It sure has made us count our blessings. The other night I picked up pizza at our local pizzeria on the way home from work. When I saw the tip jar on the counter I couldn't help from laughing; it read "401K." At first it's funny, but then you get to thinking about it, and, its really quite sad. Of course I had to give a dollar, I mean, if not for their future retirement, at least for creativity.
You may be wondering why I titled this post "PEEPS." Well I painted my nails pale yellow or so I thought. It turned out much brighter then I anticipated. I've received some harassment from my family, but many complements from my friends and strangers, go figure. My nails remind me of the traditional yellow Easter PEEPS.
We are so thankful for Easter and the reminder it brings of the sacrifice of Christ.
As we say in Greek:
" Christos Anesti "
(Christ has risen).